January 4, 2006 - Mid-Morning

It was another busy day in Amanda land yesterday. She had a busy day of group neuropsychology, one-on-one neuropsychology, OT, and 2 sessions of PT (she has one in the morning and one in the afternoon). They also did a calorie count assessment. In order to remove the feeding tube, she must be eating sufficient calories orally and be able to swallow pills. The calorie count is one of the checks they do to determine if she's ready for the tube to be removed. We don't have feedback on that yet. (Although Kurt was able to eat all of her meals with her yesterday and he said that she did a great job. And if you've seen the hospital food, you know that's pretty impressive.)
For her afternoon PT, she worked with Joann (Joann does the best job motivating her) and she actually walked around the room without the walker. Joann helped support/balance her from behind, but she did the hard work herself from what we coudl tell. She also rode the bicycle for the first time. We were very impressed to see her put in a whole six minutes! In OT, they gave her some more challenging activities and that seemed to encourage her a bit more. She bounced the ball with Kevin and lifted some barbells from her shoulder to her head about 3 times. We didn't attend her speech therapy session with her, but Mandy did read the name plaque outside the door: "Cabal" (That's her speech therapist's name. When Mandy heard it last week, she looked at the therapist, nodded and said, "wierd".) Today, her therapist responded to her reading the name off the plaque,"Yes, my name is Cabal." Mandy looked back at her and said,"Yes, I can see that on your monitor." They have the weekly update meeting with all of the therapists today, so we hope to be able to report tomorrow that she'll be able to get a pass this weekend. Fingers and toes are crossed!
Her hair cut has been rescheduled for today; so we're excited to see what new 'do Ladonna is going to create for our girl. She also had visitors from each of the potential group homes that she'll go to next come today to assess her current skill level (they do an early assesment to help determine which program level she would go into). The release date is still scheduled for the 3rd week in January.
And of course, the Mandy spirit is still fighing strong. When Kurt saw her in the evening, he asked her how her day was. Her answer was short and sweet,"It sucked." That's the girl we all know and love.

6 Comments:
At 9:51 AM,
Anonymous said…
Good Morning Amanda, I love to read your reports and the fact that you a doing so so TERRIFIC. It's raining here in Wisconsin and rain and snow tomorrow,yuk! Uncle Herb and I are coming to Dallas next month, Tam and Court bought a home in McKinney and will move in the end of Feb. We are looking forward to visiting with you and Kurt. Love, Aunt Judy and Uncle Herb
At 10:20 AM,
Anonymous said…
Hi Amanda Lou Hoo! I'm giving Jess a little superprize to bring you tomorrow. I hope you like it!
I'd love to visit you sometime, I'll come w/Jess in the next few wks.
I was watching a movie the other day and heard the theme song from Greatest American Hero and I thought of you :) 'Believe it or not I'm walking on air '
Have a fantastic day!
xoxo,
Courtney
At 10:30 AM,
Anonymous said…
Morning, Mandy. I just wanted to thank you (and TA) for calling me last night. Even though you didn't want to talk much, I loved hearing your voice. (I didn't answer the phone in time, so I called back on your cell phone and said, "Did you call me?" and you said, "No. I haven't found that purse yet, but if I do, I'll call you.") I was so happy when Thomas Ann said you told her you were going to call me. I love you, sunshine, and will see you very soon!
Hugs,
Terri
At 9:39 PM,
Anonymous said…
I had a wonderful visit with Amanda today so I thought I'd share:) She has made MAJOR improvements within the last week!
When I arrived, she was in therapy, Traci trying to coax her into doing some leg exercises while holding onto the parallel bars. We did them together. This was followed by some walking.
In Group Therapy, she responded each time she was spoken to, getting the correct answers about half the time. Matt (her old roommate) answered for her about the accident when she paused to think! It was cute how he wanted to help her out. Last time I saw her in this session, she didn't respond at all & fell to sleep!
She read all of yesterday's comments:) No, not out loud, but obviously concentrating on each one.
Lori & Kathy visited her at lunch time. Right away Mandy said to Lori "You look lovely"...so sweet to notice! While I was gone to grab a bite myself, Kathy asked Amanda "Was that Christine, your neighbor across the street?". Mandy responded "No, she USED to live across the street from me."
I honestly think this may be the first time she has really shown that she knows who I am! Thank you for telling me Kathy, it made my day!
Her lunch went very well, maybe because it consisted of foods she loves like chicken, broccoli, rice, salad & yogurt. I think she ate everything except her cake! So lets hope the stomach peg goes soon! One less thing for her to mess with.
In speech therapy with Cabell, she wrote more than she spoke. Cabell could quickly flash cards at Mandy with words & Mandy got every one of them, even the one that was upside down. But, when Cabell showed her pictures of those same words, she didn't answer so quickly & sometimes not at all. This task required some hints & coercing. Still, immense improvement!
Joanna had her walk for about 20 minutes straight with some short standing breaks! It's obvious that Mandy loves her. At one point, during a break, she started to hug her, but wobbled a bit & got moving again:) When I've seen her with Joanna, she has done whatever was requested. Once today when she was walking from section to section of the therapy area, she told us "I think they have beer in here". We said we didn't think so but she insisted "Yeah, I see some right over there"!
In case anyone is wondering, it takes 8 pillows to keep this princess comfy during her morning nap:) They were just everywhere, all shapes & sizes!
One more thing...the staff at Baylor are treating Amanda with respect, kindness, patience & they all just adore her, of course:) It's so nice to see her getting treated so well!
Can't wait for tomorrow! Good night!
Christine
At 9:42 PM,
Anonymous said…
Hi Amanda,
I'm just checking in on you tonight to see if anything new has been posted on the blog since I checked it earlier today...I just can't help but check on you before I go to bed at night. I hope you had a productive day in all your therapies today and that you cooperated with all the therapists. I look forward to seeing you again soon, but I'll hold off scheduling anything until I find out if you get to do a "Ferris Bueller's Day Off" this weekend! :o) I hope you do get to go on an outing this weekend - that would probably do a lot of good!! I hope you have a good and restful sleep tonight!
Take care,
Love Lj
At 10:19 PM,
Anonymous said…
Good evening Amanda, I just got caught up on the blog. Wow! It sounds like you are doing great! I am so glad to hear that. The Construction Department has been really busy, we have had a lot of new hires and openings lately. I am still getting Jeff to sign those BTG's as quickly as possible. Still not the same without you. You always get so excited when I bring signed BTG's. Continue to get better and know that everyone supports you. You, your family, and your caregivers are still in my prayers. Jennifer Grieser
Post a Comment
<< Home