January 2, 2005 - Late Night
Mandy continued doing well both yesterday and today. She walked 2 laps around her floor on her walker yesterday (with help from Kurt and a few standing breaks) in 2 separate walks. Her left foot seems to be improving (we saw her move her toes on it yesterday) but it still causes her some pain. Her cognition remains hazy; her communication skills improve everyday but the words are still pretty jumbled. She is feeding herself for the majority of mealtimes, but she is still prone to distraction and needs assistance making sure that she eats all of her meals. She is swallowing her pills regularly now (instead of having them mashed up in her food) which is one of the important steps towards getting her stomach tube removed. When she is "on", she is able to concentrate on tasks that she is enjoying for about 20 minutes. If she's bored, well, she's still Mandy. If she has no interest in what's going on, she tends to let you know that. Now that the swelling is down from the surgery on her left eye, it has opened back up a bit. She is now able to fully close it when she sleeps and this is good news for her cornea! We've ordered her an "eye patch" to see if it will help keep her busy hands away from her eye; if it works, we know she'll be the cutest pirate ever.
She had her best session of group neuro psychology this morning. She was attentive for the first 20 minutes and even showed interest in reading the headlines on the daily newspaper that was being discussed. (Can't blame her for losing interest in the last 10 minutes as the conversation was all about the Dallas cowboys and their most recent game.) She still hasn't recognized the current date, but we think she's getting closer as she wished her visitors last night a Happy New Year (we're not sure that recognizes what that means, but she did spontaneously wish them a Happy New Year none the less). Her doctor mentioned giving Kurt some games and activities that he could play with her to help her improve her cognitive skills.
The most exciting news is that her PT hinted that depending on how her group session goes this weekend, we might be able to get a "pass" for her this weekend for a very brief outing out of rehab with Kurt. Everyone keep your fingers crossed!

10 Comments:
At 10:19 AM,
Anonymous said…
Princess Amanda,
Good Morning beautiful. Glad to hear you keep on moving on. That is awesome to hear that you might get a little field trip out of the rehab building. I hope you go somewhere fun and have a great time. We love you and can't wait to come see you again.
Love,
Sasha, Mila and Paul
At 10:26 AM,
Anonymous said…
Amanda,
I'm so thrilled to hear how well you are doing each day . . . all the progress is amazing. I know it's difficult, but I believe you will keep getting stronger and stronger - it's really a great way to start the New Year!
Love,
Kelly B
At 11:04 AM,
Anonymous said…
Hi Amanda,
Happy New Year! It sounds like you are already making so much progress in 2006! I know that Terri & the other Brinker people that have visited have so enjoyed their time with you. They (and this wonderful BLOG) keep us all up to date on what's going on in "Amanda Land". You sure do have a lot of people that love you! Keep working hard, we are all rooting for you!
Love,
Natalie
At 11:29 AM,
StaticNomad said…
Wow! That would be awesome to get to go out! I'll be crossing my fingers, toes, arms, legs and eyes. LOL! WTG Amanda!
At 11:45 AM,
Anonymous said…
I was so excited that I got to see Mandy Saturday...and I finally got to meet Brenda (you are very cool, girl). We sang some Eagles songs (which Mandy hummed along to) and looked through the Bad Cat book. We even walked to the end of the hall, with Kurt lending support and guiding the walker, and Brenda walking ahead to show the way. Mandy was looking out the window and pointed to a sign across the street and seemed to be asking about it. It still isn't always clear what she's "talking" about, but it was very clear when we returned to the room and Kurt prepared to lift her up and put her in the bed. He said "I'm going to pick you up." In typical Mandy form, she rolled her eyes and said "Oh, God." It was wonderful to see you. Keep up the great progress!
Love, Teresa
At 11:52 AM,
Anonymous said…
aunt mandy!!!
you are so awesome!! i mean you go past the level of awesomeness!! lol yeah well keep it up girl and i will be down there this summer!!!
<3 + love you much
~Kelsey~
At 2:16 PM,
Anonymous said…
Mandy,
It's great to hear about your progress and the upcoming field trip. Keep up the good work!! You are in our thoughts and prayers daily.
Love,
Diane & Jerry
At 2:31 PM,
Anonymous said…
Hey Mandy,
Guess what? I'll be visiting you this Saturday the 7th. I'll be there with Yvonne. Let me know if there's anything that you want me to bring to you. Maybe we can take you on an outing if everything works out. Take care and see you soon.
Yvette
At 2:46 PM,
Anonymous said…
Hey Mandy! So happy to hear about all this fun stuff you are doing BUT I'm coming tomorrow to see it all for myself! I can't wait. I'll be sure to have plenty of coffee & good breakfast so I can keep up with your busy hands:) It's all for your own safety you know:) I miss you & look forward to our day together...even though it's not officially "Christine & Amanda Day". I'll take what I can get right now!
See you in the morning!
Love you-
Christine
At 12:31 AM,
Anonymous said…
Hey Cousin you just keep moving Sweet Princess, just keep it up.
This is Paul Rex over here in ole albuquerque New Mexico, you know that wierd state just west of ya! Where they make all us crazy people stay. Mark my brother , has been over here playing Rock And Roll in his old band, who by the way is very good at what they play. You 'll have to come on over when you ya get your walking papers.
Mandy We love ya Girl, you are kickin Butt, keep it up Princess, your doing fine!
We love ya Take good care of Kurt and all your good frends too.
Bye for Now
Paul
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