Our Princess Amanda

On 10/21/05; our princess fell and struck her head. She was rushed to a local hospital and it was discovered that her skull was fractured. She was immediately transferred to ICU and has been under round the clock care ever since. Family and friends are with her constantly. We are doing are best to return phone calls and keep everyone informed of her progress, however, it can be a challenge. Please feel free to check back often and leave comments.

Wednesday, December 14, 2005

December 14, 2005 - Early Afternoon


Kurt met with Baylor for about an hour mid-day today. They've set January 12th as the release date from Baylor. The plan is to send her to a home environment rehab (like a group home) on Jan. 12. She will then spend 2-4 months in the "group home" before she goes back to her own home and transitions to outpatient rehab. The goal is for Baylor to assist her in re-learning how to take care of herself and for her to be able to perform those functions with some proficiency. The home environment rehab will have a nursing aide that is available to assist her as she needs until she is completely independent. She's currently rating as a 4-5 on the Rancho Scale. The good news about her rating is that she's "officially" out of the coma. The less good news is that they don't want to remove her trach just yet as she is still fairly confused and may not be able to assist in her own care by swallowing when needed just yet. [She's refused to respond to her speech therapist at all so far.] The best news of all is that her therapists are talking about getting her back to her "normal" life and even being able to return to work at some point.

Otherwise, she continues to improve at a good steady pace. She now asks the nurse when she needs to use the restroom. (We believe that she even may be using it as an escape when the room gets too loud for her). She does tend to shut down a bit when things are too loud or she gets overstimulated, but the confusion diminishes and she is more clear and responsive when it quiets down. She is smiling regularly at people and appears to be in the "present" for about 5-7 scattered minutes in any one waking hour. Those "present" moments appear to be increasing with some regularity.

8 Comments:

  • At 3:05 PM, Anonymous Anonymous said…

    Mandy, you are truly a Christmas miracle (and a Halloween and Thanksgiving miracle, too). I love you and am thrilled with each bit of progress you make. Keep it up, you're unstoppable!

    Hugs,
    Terri

     
  • At 3:14 PM, Anonymous Anonymous said…

    Hey Mandy, that's great news to hear how well you're doing. Christine calls and emails me regularly of her visits with you and it's so wonderful to hear your progress in her voice/words. I hope to come see you again soon, but I promise not to bring the piggy like Christine did. He He!

    Love, Leslie

     
  • At 3:16 PM, Anonymous Anonymous said…

    Hi Mandy!

    I really enjoyed visiting with you last Sunday. You are looking good! Keep up the great work and get well.

    For those who are interested: During my visit to the Princess, she sang along with Andy Gibb on a CD. I told her she needs to cooperate with the doctors and therapists and get well soon so we can go eat at Babe's. To that, the Princess said, "Yes. Mmmm...Babe's." It was the best sound I have heard in a long time!

    Dan

     
  • At 3:47 PM, Anonymous Anonymous said…

    Hey there little one. I sure do miss you today:( BUT!! I'm spending the day with you tomorrow so I can see you making all these wonderful baby steps. Yes, it is a long road & we are all here for you until you ask us to go away! (I hope that never happens!)

    Dan, I'm coming too! Not even going to ask:)

    See you bright & early Mandy! I love you!

    Christine (I'm at work so no kitty in my lap:)

     
  • At 5:30 PM, Anonymous Anonymous said…

    Barb, Linda & Jessica went to visit Miss Mandy today. Mandy, we love you so much and are so impressed with your progress. You were sitting up strong today and seemed to even attempt to get out of the chair. Take your time princess!
    Mandy's mom and grandma were there as well, and we were talking about how she loves to hum & sing at the office. Mandy started to snap her fingers and wiggled as if she wanted to hear some music!!! We then sang to her (not sure if she liked it :-). Amanda you are awesome! We all are so proud of you and will be with you every step of the way.

    Love, your peeps!

     
  • At 7:43 PM, Anonymous Anonymous said…

    Hey Girl,

    Love hearing about all of the progress and the rehab plan. Don't like hearing that you're not responding to your speech therapist. Don't make me go to Dallas and be your speech therapist. I'm the therapist from hell. On a happier note-- I've bought you some real comfy pajama pants. Actually, I've also bought some for myself, Renee and Libby. The pj's are covered with monkey cheerleaders. They're hysterical! The letter on the monkeys uniform is an "A". It's a Cinderella story, or a Princess story in your case. Before you know it we'll be having a monkey cheerleader pj party. So, start cooperating with your therapist so that we can have our party. Love ya, Yvette

     
  • At 10:01 AM, Anonymous Anonymous said…

    I just want to thank you so much for keeping us all updated with your blogs. For those of us who are old friends, it makes us feel so much better to see how much The Princess is loved.

    Kurt, I send you warm hugs and a new year's wish that you and Mandy will be home together very soon!!

    Liza

     
  • At 7:57 PM, Anonymous Anonymous said…

    Mandy, you keep chuggin girl. I can't wait to see you tomorrow evening! I'll be there around 7 p.m.
    Rene

     

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