December 1, 2005 - Mid-Morning

Lots to share on this one, so sit back. Mandy had another CAT scan this morning to evaluate her "readiness for transport". Her neurosurgeon hasn't looked at it yet, but we anticipate him releasing her for transport as early as tomorrow. The first thing that means is that they will release her from the step-down unit and into her own room. The second thing that means is that we will be able to bring her back home to Dallas as soon as 1) we've selected a hospital and 2) they have a bed ready for her. Kurt thinks he might have narrowed it down to 2 good choices and is in the process of doing the paperwork, getting the neurosurgeons/neurologists in touch with each other and generally crossing i's, dotting t's. Should all things go well, we believe that she may be coming back next week. We did find out that Kurt should be able to accompany her in the plane, which shoudl be great for both of them. We'll keep everyone posted on the travel schedule etc as it develops.
Her trach has now been capped for over 12 hours and she's been breathing through her mouth and nose with very little oxygen assistance (yahoo - no more raw nose!). She tried doing some talking last night in the evening visit, but Kurt wasn't able to make out what she was trying to say so we haven't heard anything beyond her initial first words late yesterday afternoon. (Her voice is barely a whisper at this point). Her trauma doc did get her to respond to some basic commands this morning (wiggle your left foot, squeeze my hands) but not others (give me the thumbs up sign). She seems to be responding only to the things which interest her at any given moment (no one who knows the princess well can be at all suprised by that). She didn't feel like talking at all this morning, but she was "awake" and watching Kurt walk aroudn the room a bit when she wasn't watching t.v. (we've been keeping the channel tuned to the Food network and the Animal channel as they seem to be her favorites). We're trying to avoid overstimulating her as we've been warned by the PT that overstimulation can cause her to shut down entirely and tune us out. So we're trying to keep our requests for interaction minimized to the periods when she seems to feel up to it. As we've been told many, many times, brain injuries often move at 2 steps forward, 1 step back. As long as her net progression is forward, we'll take it at whatever pace she can manage.

28 Comments:
At 12:00 PM,
Anonymous said…
Keep it up, little fighter. You're doing great!
Love you,
Terri
At 12:10 PM,
Anonymous said…
Mandy you are sooo awesome! Rest as much as you need little one. We can be patient:) Glad to hear relief for your little nose:)
Whatever you want or need...you got it!
I love & miss you.
Christine
At 12:17 PM,
Anonymous said…
Amanda,
Wow - soon to be in your own room! That is fabulous news.
There is such a joy around the office that you spoke - it's so great and even better that you may be in Dallas next week! I'm just so grateful. I can't wait to hear more and more good news. Keep it up....
Love,
Kelly B
At 12:29 PM,
Anonymous said…
God is great and you are his child! I couldn't be happier for you, babe. I am sure you have been about to burst with all those words inside you! Take your time, lots of love and prayers, Debra R.
At 12:34 PM,
Anonymous said…
Mandy, Keep up the talking. I understand you asked the nurse (Lori) to "come back" when she was changing your pillow position guess you didn't like the way she set you up in bed. You just tell the royal court what you want and your command will be carried out.
At 12:58 PM,
Anonymous said…
You do what you want Amanda, just keep moving forward and come home so we can all visit you and show our love to you directly sweet girl. Rest up, get better.
See you soon!
Rene
At 12:59 PM,
Anonymous said…
Hey baby girl - I'm having seared asparagus for lunch and thinking of you. I know how much you love the asparagus! I wish I could feed you some right now..xxoo B.
At 1:30 PM,
Anonymous said…
slow and steady sounds just fine to me, Amanda! just keep going in that direction. it's so amazing to see (hear about) a miracle in action... you are a miracle. :)
love,
amy p
At 2:09 PM,
Anonymous said…
Way to go Mandy! You're making progress by leaps and bounds. Before you know it you'll be back in Dallas.
Yvette
At 2:26 PM,
Anonymous said…
Prayer works and God hands down miracles! Keep on fighting Mandy. I'll keep praying for you and thinking about you. I can't wait to see you when you get back to Dallas!
Dan
At 3:36 PM,
Anonymous said…
A miracle in the making!
God is Good!
At 4:24 PM,
Anonymous said…
Gosh Mandy, awesome news!!! I know you will be so happy to be back in Big "D" and we will be so happy to have you back so we can come see you, finally, and do anything you need us to do for you!
Love, Leslie
At 4:27 PM,
Anonymous said…
GO AUNT MANDY!!!!!!!
yeah keep it up girl!!! ur the best aunt ever!! keep fighting!!!
<3 much
~Kelsey~
At 4:30 PM,
Anonymous said…
Way to go Princess Many!!! Looks like home Dallas will be welcoming you soon Little One! Dazzle them with all that you are Mouse!
At 4:41 PM,
Anonymous said…
Hurrah, Hurrah lots to celebrate. You are amazing Amanda!! Continue to heal and get stronger! We are with you and praying for your full recovery. What a huge blessing. You give us so much to be thankful for!!
Hugs & Squeezes,
California office
At 4:49 PM,
Anonymous said…
WAY TO GO MANDY!!!! Keep up the great work.
Love ya,
Renee
At 5:20 PM,
Anonymous said…
Amanda,
We are so happy to hear such wonderful news. Your own room, how awesome is that!!!! Keep it up, you're doing great....All our love and prayers to you and your family!!!!!
xoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxo
New Jersey
At 5:24 PM,
Anonymous said…
Hey Amanda,
It's Shannon's friend Kristine, here in cold Colorado. Shannon is up here with Mike and some friends going skiing this weekend and she called me today to get the weather report. I read today's blog update to her over the phone so she can keep tabs on you while she is away from a computer. She said she will probably call me tomorrow so I can read her tomorrow's update, unless her cell phone battery dies! Doesn't she know to always take a charger with you while traveling?!?! ;)
Anyway I am glad to hear the great news of your tremendous recovery. You have a sea of friends and family anxiously awaiting your return home to Dallas and it sounds as if that will be very soon!!
Keep it up, it will be a very Merry Christmas for us all!!
Kristine Rouse
Denver, Colorado
At 6:08 PM,
Anonymous said…
Mandy-
So happy to read of your progress. Wonderful to hear that you'll be in Dallas for Christmas.
XO,
Jay and Daniel
At 7:03 PM,
Anonymous said…
Hi Mandy. Just straightening up, getting ready for the big TV night. I hope you feel better... no headache or tummyache. I can't stand the thought of you being in any pain. Wish I could take it all away for you.
I did a tiny bit of Christmas shopping this week. Got my family done all in one stop! Plus I ordered a bonus gift for you today:)
Well, I'll check back again to say good night.
I love you.
Christine (& Robin:)
At 7:20 PM,
Anonymous said…
What a beautiful day it'll be when you get back here on Texas soil!! We all miss you and look so forward to telling you in person how thankful we are that you are progessing so well and fighting so hard to get back on your feet.
I'm getting you a "carpool present" for Christmas so I'm hoping that you'll be in Texas to open it - I realize you won't be in the carpool to open it, so I'll bring it to you when you get here - sound good? I know you like presents!!
I hope your stomach and head are feeling better...poor sweet baby...and that they've turned downt the A/C for you and you're resting comfortably tonight.
I have to tell you this...my neighbors across the street put one of those Christmas ornaments in their yard that looks like a bear and it moves it's head back and forth...well Bosco (my dog) saw it and charged out the door to bark at it - he's so tough! I don't know if he thought it was another dog or what, but it's hilarious!!
Well, it's time to eat supper so I've gotta go - I'll be saying a prayer for you and Kurt tonight and will keep my fingers crossed that you're home sooner than later!!!
Take care,
Love Lj
At 8:07 PM,
Anonymous said…
Princess Amanda,
Hola again. Glad to hear more good news today. We are looking forward so much to you coming home. We love you and miss you. Keep up the good work. We just can't wait to see you again.
Love you, Love you, Love you,
Sasha, Mila and Paul
At 9:53 PM,
Anonymous said…
Go Mouse Go. I just heard of your accident this week. I've read thru all of the daily updates and am so glad to hear of the progress you've made. I know you can do it.
I have you, Kurt, Mama Mouse, Ron and the rest of the family in my prayers.
Keep up the good work.
Love,
Derya, s.s.s.
At 10:38 PM,
Anonymous said…
My dearest Mandy...I cannot stop smiling inside & out. You are making us all so happy! I love you so much & can't wait to have you back on home land.
Keep hugging that monkey! He loves you too! What's his name by the way? You name every animal...he's got to have something special...Prince "blank". You'll think of a cute one!
Sweet dreams! Sleep tight! Don't let the bed bugs bite!
Christine (& Pooh:) Amazing how they fight to get in my lap when I sit in this chair!
At 10:53 PM,
Anonymous said…
Your doing great Amanda. Miss you everyday at work. I may go by and shake one of your snow globes....Hope that is okay. I am happy to hear that you will soon be back in Dallas. I'll shoot a prayer up for you again tonight!
RoMo
At 9:35 AM,
Anonymous said…
Hello Amanda and Kurt: It was so great to hear your progess. Looking forward to you coming back home. My prayers for you and your family will continue> Love Ya Auntie Sue in Wide-Awake Greenville
At 10:25 AM,
Anonymous said…
I don't have Internet access at home, so the first thing I do when I come in to work is check this blog. What a wonderful surprise this morning! Keep it up, girl.
Love,
Teresa
At 8:29 PM,
Anonymous said…
hi amanda i have never met you before i'm Lori's daughter Kendall.But i know you will make it.Were all praying for you.
The Kite
family
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