November 27, 2005 - Mid-Morning

The princess was pretty groggy this morning. She didn't feel like responding to us too much today, but since it's only been approximately 48 hours since her surgery we're going to take that all in stride. Her big medical news today is that they downsized her trach this morning. No plans to begin the intermittant caping of the trach yet, but that will be the next steps in her respiratory recovery.

Kurt is researching (and having some folks help him) facilities in Dallas. At this point, she's not ready for rehab nor is she ready to travel, but we're trying to be ready for that day when it comes. From what we've learned, she'll need to be able to participate in her rehab which she is not ready to do yet. One of the indices used by her medical team to measure her level of cognitive function is the Rancho Los Amigos. According to the scale, she's floats somewhere between a 2 and a 3. Most of the rehab facilities would like to see somewhere close to or at a 4 to begin rehab work. We're absolutely not going to move her until she is medically ready for it, so we'll all just have to continue being as patient as can be while she continues the hard work of healing herself.

PS We checked on the flowers, balloons, etc rules and discovered that everything BUT flowers is o.k. Flowers are a no-no in the MSI unit. Visiting hours remain the same.