February 16, 2006 - Early Morning
We thought we'd reach way back to 1993 for a picture today - anyone else remember having a perm back then? Of course, Mandy looks as cute as ever. Her progress has slowed somewhat in the past few weeks. In part, because she's been battling some physical issues (inconsistent sleeping, inconsistent eating and of course that darn foot) and in part because it's the natural progression of TBI (traumatic brain injuries). We have to remember that she suffered a severe injury to the frontal lobe of her brain and is going to have lasting effects from the accident no matter how much therapy she receives. Her therapy is a full-on effort to rehabilitate her to the fullest extent possible, but we can only do as much as she can physically, mentally and emotionally handle. Because so much is still unknown about the brain, we really have no way of knowing how much she will ultimately recover. We hope for the best and believe in her strength and spirit. We have to let her tell us how much she is capable of accomplishing. We know that she is not a statistic or a case study, but a unique woman that has already performed miracles for us. So for now, we focus on her happiness and quality of life and supporting her in getting as much of her life and abilities back as possible.
The princess asked for her make-up this weekend and was able to deftly able to "do her face up". When Brenda called her on Sunday, she was drinking coffee and working on a word search at her house. (She doesn't necessarily do the word searches accurately, but she appears to really enjoy them). She sounded really content and happy. She still has someone with her at all times because her sense of safety is not as accute as we'd like it to be, but she has improved at communicating with us. She lets us know now when she is about to take an action that might require assistance. ("I'm going to go use the bathroom!") Her eyesight was tested at 20/20 recently so we know she's seeing 100% even if that eye still looks a little bit lazy to us. They believe that what she is identifying as pain in her foot is not pain but just general sensation. (It's a mis-coding error in her brain) They are having her put lotion on her foot every day to try and retrain that portion of her brain into reinterpreting those messages correctly. Conversation with her is still a bit jumbled cognitively with misplaced or made-up words, but there is some slow improvement to it overall. We have a conference on February 23 with her medical team to discuss their initial evaluations of her and the long-term treatment plan. Everyone think good thoughts that day!

20 Comments:
At 10:45 AM,
Anonymous said…
Hi Amanda,
Well - I definitely had a perm back then, but don't think I'll be showing everyone. It was not as cute as yours!
I've been sending healing thoughts your way - I know the constant therapy is a strain, but I know you have strength that most of us only dream of - you've already proven that. So keep the faith, keep up the hard work and we'll keep sending prayers for a miracle your way!
Love ya,
Kelly B.
At 6:25 PM,
Anonymous said…
Hi Amanda,
Hope you had a terrific Valentines Day. It sounds as though you have been a bit under the weather. Maybe you will be able to cook up some of your favorite recipes soon and that will help with your appetite. The picture of you was adorable. I had never seen you with permed hair or long hair for that matter. Cute as a button as always. You are so strong and You've come along way Baby!! Keep up the good work!! Sending good thoughts and prayers for you to feel better!!
Love,
Debbie
At 10:08 PM,
Anonymous said…
Hey, so glad to see an update. Amanda, I know you don't know me, but I feel you have become part of my family thru all of this.I continue to pray for you and always look forward to hearingyour progress
At 10:09 PM,
Anonymous said…
by the way I forgot to add this is Jude from the Laugh Shack
Thank you Brenda for your diligence in updating us
At 10:36 PM,
Anonymous said…
Hello Amandaholics:o)
Today was a wonderful day with Amanda!! She was smiling a lot, big genuine smiles, not just a grin! It was so nice to see her in such a great mood consistently. Today speech, counseling & educational therapies were all about the same. They all ask similar, if not the same questions. My guess is that 85% of those questions were answered correctly, with Mandy only missing her age, which she said is 47. She got the year correct, just not the calculation.
Thumbs up to whoever bought her the black capri sweat suit with side stripes. She got quite a few compliments around CNS! I’d have to agree, she was looking very sharp. It was also nice to see her wearing jewelry, which she was happy to show off.
In physical therapy, with Sarah, she was supposed to take off the left shoe & sock to rub the lotion on her foot. This was NOT what Amanda had in mind at all! She scooted clear across the matt away from Sarah, telling her to “Stay away from me. You are pissing me off!” Then moments later she took the shoe & sock off & together the 3 of us worked on the dead skin on Mandy’s foot. By the time we finished that project, there wasn’t much time for walking, but she did go about 100 feet with the walker, using it for holding up her weight so as not to put any on her left foot. I heard that yesterday she walked about 450 feet!
At lunchtime, she ate almost everything & spit out nothing until the very end, she spit out a bite of chips.
Gene sent Mandy a Valentine’s card with “Cupig” on it. She read it again after she finished eating & said it was “very nice & funny”. I called Gene so she could talk to him. She said “Hey Gene, I just called to thank you for the card. It’s really nice & just perfect.” They talked for a few minutes, ending with “I love you too”. Gene said he had tears after such a sweet conversation.
Rene Tartaglino surprised us towards the end of lunch & sat in on Mandy’s counseling session, too. We got a sample of Mandy’s monkey yell…just not very loud this time! It was a fun hour of reminiscing, as Kay asked us all about how we know Mandy, etc. I brought a thank you note from Amanda, thanking me for her birthday gift last year. She read it several times today & she said she remembered the gift. Kay, her counselor, said that we should bring items like this to help Mandy recall her life.
Sleep tight bloggers!! I love you Mandy!
Good night.
Christine
At 11:42 AM,
Anonymous said…
Wow - what a day in Amanda-land. I am so happy to hear such a great report from Christine. Amanda - keep up the good work and thanks for the update Christine!
Love ya,
Kelly B
At 3:03 PM,
Anonymous said…
Hi to Amanda and all of her court.
So glad to see an update on how things are going. Was getting a little concerned with no news.
Keep up the good work Amanda and all of you wonderful caring people helping her and Kurt along. Still keeping you all in our prayers here in Wisconsin.
We are at 16 degree's for a high today but sunny. On Saturday we will be at a high of 12 with 35 below wind chills.. Not that it really matters but I thought you might like to know and be glad for your weather in Texas... May be cold outside but our hearts are warm with good thoughts that things are getting better every day.... Just look how far you have come in the last 4 months Mandy... Yeahhhhhhh
The body has a way of healing itself with time. So let the time march on to more healing... God has you in the palm of his hand.
Love and Hugs
Kathi & Rusty in Waukesha
At 4:35 PM,
Anonymous said…
Hi Mandy.
Yep, I was a member of the perm crowd then, too. Even though I have only gotten to come see you once, I think about you every day and say a little prayer that you can keep working and achieve the best possible outcome. I'm so anxious for you recover that sometimes I have to stop and remember to thank God for the remarkable progress you've already made. Keep up the good work, girl. Love, Teresa
At 4:47 PM,
Anonymous said…
Hey, Mandy, I really enjoyed spending lunch time with you today. It makes me happy when you eat well and seem content, like you did today. (I thought it was cute when Thomas Ann told me your nice warm top came out of her closet, but you said it came out of Lori's.)
I think of you every single day, whether I get to see you or not. I hope you know how very much you are loved!
I'll see you on Wednesday, same lunch time, same lunch table. Until then, hugs to you!
Love,
Terri
At 11:23 PM,
Anonymous said…
Hi Mandy! I really enjoyed the time with you the other day. Thank you to you and Christine for letting me share that time with you. I'm thrilled to work so close to you now. I'm going to try and visit after work times, that way I don't interrupt your sessions. I hope you had a good weekend! See you soon!
Love, Rene
At 9:02 AM,
Anonymous said…
Good morning Mandy!
I'm working hard for the next 3 days...then it's Christine & Amanda day again:) I can't wait! Hope you had a great weekend & have a great start to a big week! See ya Thursday! I love you!
Christine
At 11:22 AM,
Anonymous said…
Sorry I have to miss lunch with you today, Mandy. I have some kind of stomach and head thing, so I don't want to breathe on you. (You've had enough problems with getting sick lately!) I hope you have a good day, and I'll see you soon.
Love,
Terri
At 12:09 PM,
Anonymous said…
This morning I was looking in a magazine and thought about the picture of you Amanda in your sari. You looked so beautiful in that dress!!
Good Luck this week with all that is going on in your neck of the woods. Sending good thoughts and prayers your way. Keep up your great efforts at therapy Amanda. We are rooting for you!!
Thanks to everyone for the updates!
Debbie
At 6:22 PM,
Anonymous said…
Amanda,
I'll be sending positive thoughts to you tomorrow the 23rd - I hope we hear miraculous news! Keep the Faith!
Love ya,
Kelly B.
At 6:39 PM,
StaticNomad said…
Wishing you good thoughts tomorrow!!!
At 10:29 AM,
Anonymous said…
We are all thinking about you Mandy! I'm wearing my pretty antique barrette you gave me. I will see you next week.
Love,
Jess
At 8:56 PM,
Anonymous said…
Amanda started our day off with a hug & “I’ve missed you!” right when she got off the bus. Of course, if that had been all for the day, I would have been happy!
Her 1st session was speech with Leslie. As we approached Leslie, Mandy said, “Are you going to do words on me?” She remembers each of her therapists & what they do.
In PT, she walked using a pole for balance & had a weight wrapped on her left leg that served 2 purposes: If she held the foot up, the weight would help build muscle. If she got tired of holding it up, she would put her weight on that foot, which is what Sarah (PT) wanted. She walked all the way down the halls to her next therapy, but not without a few choice words about it!
Sheri Robertson joined us for the day while Mandy was walking. As soon as she saw Sheri, she said, “I missed your card”. Sheri explained that she mailed it, but with the holiday, it probably took longer in the mail. When Kurt arrived, sure enough he had the card in his briefcase. Sheri sends a card weekly so Mandy has come to expect it. Good sign of the short-term memory!
During lunch, the RA asked Mandy about her friend, referring to Sheri. Amanda answered, “That’s my friend, Sheri Robertson. She’s famous for stealing.” Maybe she knows something about Sheri that the rest of us don’t! Watch out!
After therapy, a nap was unavoidable as Mandy slipped off to sleep while watching TV. Then she was off to have dinner out at Boston Market with other clients.
It was another awesome day in the land of Amanda! Good night bloggers!
At 8:58 PM,
Anonymous said…
Oh yeah...that last note was from Christine:)
At 9:07 PM,
Anonymous said…
It sounds like it was a good day today Amanda! I think of you and miss you every day!!!! I hope the meeting went well...we look forward to hearing about it. Thinking of you tonight and sending good, positive, healing thoughts your way...oh yea, did I tell you I MISS YOU???
Take care,
Love Lj
At 1:26 AM,
Anonymous said…
Great progress Mandy! Keep up the good work. And to those who are there, every day supporting you in front of and behind the scenes- I find their strength and resilience truly remarkable and inspiring. No doubt they are you are just following your lead.
Jeff Vernor
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